Date Approved
5-4-2023
Graduate Degree Type
Thesis
Degree Name
Social Work (M.S.W.)
Degree Program
School of Social Work
First Advisor
Dr. Paola Leon
Second Advisor
Dr. Sally Pelon
Third Advisor
Dr. Emily Nichols
Academic Year
2022/2023
Abstract
This study seeks to understand the experience of end-of-life caregivers and how their subscribed communication norms regarding death impacted their caregiving experience and preparedness to make decisions on their person’s behalf. Eight participants were recruited from a Midwestern support group facility with a population of nearly 8,000 members that include cancer and grief support members. Criteria required adult participants that were less than 10 years out from their caregiving experience. Phenomenological research methods were used capturing eight opened ended interviews about participants death communication history, caregiving experience, and reflection on current death communication norms. Thematic analysis was utilized to assess common themes amongst the participants. Themes included patterns of communication norms, previous caregiving experience and longer term caregiving as protective factors, and collaborative communication about caregiving was a protective factor for reassurance in decision making. The themes support further research and implications for future practice for earlier interventions to establish end-of-life care directives, education about end-of-life and care needs, and postventions for caregivers.
ScholarWorks Citation
McKenzie, Maureen H., "Talking About Death: Exploration of the Impact of Death Communication Norms on End-of-Life Caregivers" (2023). Masters Theses. 1091.
https://scholarworks.gvsu.edu/theses/1091
